Kenya- Hunger threatens effective use of anti-AIDS drugs
By Johnstone Wanjala, Sima Community Based Organisation, Kenya
Dressed in a beautiful brown cloths a donation from well-wishers – Grace 8, recites a poem before guests at the Nzoia county social hall in Kitale.
In her thin long hair, the light skinned orphan smiles charmingly at Standard Group’s HIV/AIDS peer educators and speaks in a strong and hopeful voice.
Her poem is touching. Her voice suddenly becomes faint. She plods on softly till the last line.
"HIV/Aids
The mother of all killers
You are shameless;
Took my parents away.
HIV/Aids
You hurt individuals
Family and households
You have brought disaster
We dare you to stop now”
Her job done, she dizzily moves to the nearest bench, where she lays her head in her aunt’s laps.
As she recited the poem, a boy aged about four kicks around a football made of plastic bread
wrappers tied with rope. After two minutes, he sits on the floor and then lies down – tired. He sucks his thumb quietly before drifting to sleep.
As a group of HIV- positive “clients” entertains journalists, the boy wakes for a minute, tries to nod his head to the rhythm of drums but is soon overcome by sleep. His mother casually picks him up and continues dancing with the group.
These are some of the lucky 76 Kenyans who have free access to anti-retrovirals (ARVs) but lack basic meals. They belong to Wakibe’s HIV/Aids support group.
Medicens Sans Frontiers (MSF) Belgium, Mbagathi Hospital and Coptic Hope Centre supports them with free ARVs, counseling and follow-up. Some are monitored to see if they actually need the ARVs.
"Mimi ni Glady’s Nyongesa na niko na HIV. Kwa kusema kweli, madawa tunayo, lakini kizunguzungu imetuzidi (I’m Glady’s Nyongesa and I’m HIV positive. We have drugs but dizziness overwhelms us),” says one member.
They all introduce themselves as MSF clients and found a sheng name for their HIV/Aids status – Uzi (thread). “Mimi nina uzi (I have thread),” they say. The connotation is that they are as thin as thread, not because of the illness but for lack of food.
Glady’s, 36, a housewife and mother of six. Tested HIV- six –month old baby died of pneumonia. “I did not believe the results. I jumped from one Voluntary counseling Test centre (VCT) to another – Avenue, Mbagathi, Casino, Kenya Medical Research Institute (Kemri) but the results were all positive. My husband and I blamed each other and did not speak for a year although we lived in the same house”
With the couple now on an ARV regime, life has been a lot better. But with her husband retired from work on medical grounds and no source of income, Glady’s weight has dropped from 83kg to 38kg. “The ARVs have made me feel better when I started. But now they make me hungry and my head goes round and round. Sometimes I have no breath so I cannot even talk or get up.”
Beatrice Naliaka, 32, a former businesswoman, says she wanted to die when she tested HIV- positive. The married mother of five boys says she had a CD-4 count of four and her mouth kept bleeding. A where she joined the group in 2003.
“Initially, Simiyu had only six members. Then we would get nutritious foods, porridge and boosters every Friday and this took care of the ARVs. But suddenly there was an influx. Over 120 widows, jobless people and their children showed up and the meals were reduced to once a month,” says Naliaka.
Naliaka, who spent most of her money on herbal medicine and witchdoctors, says she is now jobless. But being at Simiyu has made a difference. From the group, the 135 members get moral support and food twice a month.
Simiyu started as a charitable outreach health services and home-based nursing care to the Huruma community with the Nursing Council of Kenya. Says Irine Nekesa Wesonga, the director and co-ordinator: “late 2002, one of our colleagues stopped coming to work for weeks.
A vegetable vendor told us she dive and hid herself for fear of stigmatization. When we visited her, she was too sick to recognize anyone or talk. She succumbed within the week”
Feeling guilty and ashamed, says Wesonga, they asked the vegetable vendor to inform any community member willing to disclose their status to come to Simiyu flats where they had a medical clinic. That is how clients started coming in large numbers.
When members get the time and energy, they weave woolen mats; spin kikoi, bed covers, shirts and shorts. They also pack liquid soap and beads.
Dr. William Kiarie of Crystal Hill, who offers voluntary services at Simiyu and has sponsored a youth member to driving school, says lack of food affects the administration of anti-retrovirals.
“When they stop taking drugs due to starvation, the whole cycle of treatment is affected and they have to start all over again. The side- effects can be devastating,” he says.
Prepared by:
Johnstone Sikulu Wanjala, Programme Coordinator/ Journalists.
Dressed in a beautiful brown cloths a donation from well-wishers – Grace 8, recites a poem before guests at the Nzoia county social hall in Kitale.
In her thin long hair, the light skinned orphan smiles charmingly at Standard Group’s HIV/AIDS peer educators and speaks in a strong and hopeful voice.
Her poem is touching. Her voice suddenly becomes faint. She plods on softly till the last line.
"HIV/Aids
The mother of all killers
You are shameless;
Took my parents away.
HIV/Aids
You hurt individuals
Family and households
You have brought disaster
We dare you to stop now”
Her job done, she dizzily moves to the nearest bench, where she lays her head in her aunt’s laps.
As she recited the poem, a boy aged about four kicks around a football made of plastic bread
wrappers tied with rope. After two minutes, he sits on the floor and then lies down – tired. He sucks his thumb quietly before drifting to sleep.
As a group of HIV- positive “clients” entertains journalists, the boy wakes for a minute, tries to nod his head to the rhythm of drums but is soon overcome by sleep. His mother casually picks him up and continues dancing with the group.
These are some of the lucky 76 Kenyans who have free access to anti-retrovirals (ARVs) but lack basic meals. They belong to Wakibe’s HIV/Aids support group.
Medicens Sans Frontiers (MSF) Belgium, Mbagathi Hospital and Coptic Hope Centre supports them with free ARVs, counseling and follow-up. Some are monitored to see if they actually need the ARVs.
"Mimi ni Glady’s Nyongesa na niko na HIV. Kwa kusema kweli, madawa tunayo, lakini kizunguzungu imetuzidi (I’m Glady’s Nyongesa and I’m HIV positive. We have drugs but dizziness overwhelms us),” says one member.
They all introduce themselves as MSF clients and found a sheng name for their HIV/Aids status – Uzi (thread). “Mimi nina uzi (I have thread),” they say. The connotation is that they are as thin as thread, not because of the illness but for lack of food.
Glady’s, 36, a housewife and mother of six. Tested HIV- six –month old baby died of pneumonia. “I did not believe the results. I jumped from one Voluntary counseling Test centre (VCT) to another – Avenue, Mbagathi, Casino, Kenya Medical Research Institute (Kemri) but the results were all positive. My husband and I blamed each other and did not speak for a year although we lived in the same house”
With the couple now on an ARV regime, life has been a lot better. But with her husband retired from work on medical grounds and no source of income, Glady’s weight has dropped from 83kg to 38kg. “The ARVs have made me feel better when I started. But now they make me hungry and my head goes round and round. Sometimes I have no breath so I cannot even talk or get up.”
Beatrice Naliaka, 32, a former businesswoman, says she wanted to die when she tested HIV- positive. The married mother of five boys says she had a CD-4 count of four and her mouth kept bleeding. A where she joined the group in 2003.
“Initially, Simiyu had only six members. Then we would get nutritious foods, porridge and boosters every Friday and this took care of the ARVs. But suddenly there was an influx. Over 120 widows, jobless people and their children showed up and the meals were reduced to once a month,” says Naliaka.
Naliaka, who spent most of her money on herbal medicine and witchdoctors, says she is now jobless. But being at Simiyu has made a difference. From the group, the 135 members get moral support and food twice a month.
Simiyu started as a charitable outreach health services and home-based nursing care to the Huruma community with the Nursing Council of Kenya. Says Irine Nekesa Wesonga, the director and co-ordinator: “late 2002, one of our colleagues stopped coming to work for weeks.
A vegetable vendor told us she dive and hid herself for fear of stigmatization. When we visited her, she was too sick to recognize anyone or talk. She succumbed within the week”
Feeling guilty and ashamed, says Wesonga, they asked the vegetable vendor to inform any community member willing to disclose their status to come to Simiyu flats where they had a medical clinic. That is how clients started coming in large numbers.
When members get the time and energy, they weave woolen mats; spin kikoi, bed covers, shirts and shorts. They also pack liquid soap and beads.
Dr. William Kiarie of Crystal Hill, who offers voluntary services at Simiyu and has sponsored a youth member to driving school, says lack of food affects the administration of anti-retrovirals.
“When they stop taking drugs due to starvation, the whole cycle of treatment is affected and they have to start all over again. The side- effects can be devastating,” he says.
Prepared by:
Johnstone Sikulu Wanjala, Programme Coordinator/ Journalists.
Sima Community Based Organization
PO BOX 1691, Kitale
30200 Kenya.
Phone: +254- 733 453 339.
Email: sikuluj@yahoo.com
PO BOX 1691, Kitale
30200 Kenya.
Phone: +254- 733 453 339.
Email: sikuluj@yahoo.com